News/Events

The Rare Disease Alliance posts the calendar of the Illinois General Assembly (House of Representatives calendar, Senate calendar), rare disease conferences, and the meetings of the Illinois Rare Disease Alliance board.

News

Planning Rare Disease Day 2027

Help us with the program, pick speakers, panelists, awardees, leave our mark in Springfield, and spread the word.

Tuesday 1 December 2026 at 7 pm - 8:30 pm

RSVP to receive the meeting link.

Events

Still need help?

If you would like your event listed on our calendar please let us know.

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